Independence Can Be Scary

Hello Everyone,

I am a pretty confident blind person when it comes to getting around and traveling. There are so many times that people say to me, you are just so brave and are not scared I just can’t seem to get there. And they feel like they are failing, that they will never be independent because of it. So today let’s be real for a minute.

I am scared, I am terrified, I am anxious as all heck, I doubt myself, I doubt my abilities. These are all very real things in my world. It can be scary to stand at an intersection with all of the noises around you and trust that you are going to get yourself to the other side safely. There are many times where I doubt myself and stand there for two cycles of the light so that I can work up the courage to go.

When I go somewhere new for the first time in the same city, or a whole new city. I feel anxious and my brain gets pretty creative with what may happen on that journey. I plan it out, I  talk my self through the process.

Fear is real and fear is ok. It is how we push ourselves to do the things that we feel like we can’t do. I feel like there is no one sighted or not who doesn’t have some sort of fear, anxiety, and self-doubt at some point or heck many points along the way.

Fear is what can drive us to work through it and prove to no one but ourselves that we can do it. You are not alone in fear and you are not alone in doubting that you will get to where you want to go, but you are supported to get there and you will get there. Believing that you will get there and telling your fear to “watch me” will get you to where you want to go. Whether that is crossing that busy intersection, riding the bus, moving out on your own, going for that new job or promotion, or just living the life you want to live; use all those feelings to propel you to where you want to be.

YouTube video of me crossing a street and having a little chat with you and my dog Rick .

Until Next Time

Ashley and Rick

Blind Dreamer – “Do you see in your dreams?”

Hello Everyone,

Do people who are blind dream? How do you dream if you don’t see in your daily life? These are questions that I get all the time. Now everyone is different but I can see how people would wonder about something like this so let’s chat about how I dream.

First of all, do I dream? The short answer is yes. Now how I dream has changed a little over the years. Why is that you may be thinking, well it is simple; because the way that I see has changed over the years.

When I was younger and had more vision I saw things in my dream the same way that I saw them in real life. So they were not clear, they were blurry and I could not always make out what I was seeing. Which makes sense because that was how I saw the world at that time. As my vision got worse over the years that is what was quite normal for me.

Now I have been totally blind now for about 5 years and that has really changed for me. For the first little while, I would dream like I had before. It was like I was dreaming from my visual memory. But over the last year, I have really noticed that I don’t have the visual memory that I used to. So now I really only dream with my other senses. I will hear things, or smell them and sometimes oddly enough taste or feel things.

I have found over about the last year that I don’t always remember how things looked or have a hard time pulling up an image of something in my mind. I was always told that your visual memory will sometimes fade, and I have definitely found that. Now I don’t think that this is for everyone, just like blindness the experience that one has when you are blind is a spectrum and not the same for everyone.

There isn’t a part of life that someone who is blind doesn’t experience they just experience it differently.

Until Next Time,

Ashley and Rick

Morning Routine

I am not a morning person, I have never been a morning person. In fact there was many days where I started my day with profanity, just dragging my sorry butt out of bed was horrible.

I have always envied those that were able to get out of bed and enjoy their mornings, who were happy and could speak with people within the first 2 hours of getting up with out bitting their head off.

Now that we have moved and I am in the same city that I work in, I my friends have become a morning person ! I know; if you know me personally you are thinking “pigs have started flying, the rainbows have aligned, and unicorns are landing in your back yard.” But, I am telling you it is true.

1E16BBC3-6E2E-4D7A-870C-47F1620482DB An early morning selfie !

So I thought I would take some time to share my morning routine with you not only to prove that this is true but because I think sharing these mundane parts of my life show, that living life as someone who is blind is no different than someone who is sighted.

My routine starts the night before, with having the boys help me make their lunch. And going up to bed by 9pm, where I listen to a book for about half an hour. I am usually turning the book off and nodding off to sleep at about 9:30 p.m.

My night before is critical to this new morning routine working. Without a good nighttime routine and getting to bed at a decent hour I will be dragging my sorry butt the next day for sure. One would think I would have had this figured out before the age of 33 but sometimes I am a slow learner.

I set my alarm for 4:25 a.m. I usually get out of bed by 4:30 a.m. first stop is the shower. I like to shower in the morning first because it wakes me up and second because I have short hair so it needs to be washed everyday. After a quick shower it is hair, makeup and getting dressed.

Once I get dressed I go to my side of the bed and grab my Apple Watch and my phone and Rick knows that is the get up sign for him. He jumps out of his bed and bounces around, I tell him every morning “shhhh” so he does not wake the whole house. That would ruin my purpose of getting up so early.

I go downstairs and feed Rick my Guide Dog and let him outside to do his business. Then the boys lunches they made the night before go from the fridge to their bags along with anything else I need to put in. I don’t make my daughters lunch she is 14 she is more than capable of making her lunch and deciding what she wants to eat.

Then I take my medication make myself a coffee and sit on the couch and listen to my book and write in my journal. I am usually sitting on the couch by about 5:10 a.m. The next 50 minutes are mine all mine.

2D0EFA16-5E99-4B12-84F7-AA8CD11923B1 A photo of my journal and my coffee with Rick sleeping on his bed. He is not a morning doggy.

After the first time when I got out of bed early and was ready and had this time to myself I was hooked. It is the one time of the day that the house is silent (except for Rick chewing his bone) and there is no one that is needing me or asking me something. That I can sit and take some time for me and not feel guilty. And it is ohhhhh so GLORIOUS ! In this time I do not check emails or do anything work related, I have to be very intentional about this part because I am kind of a workaholic and I know this so I am working on that.

Having this time to myself in the morning makes my whole day just go so much better, I find I am happier and start my day off the right way. This makes me love this time and inadvertently I have become a morning person.

At 6:00 a.m. I go upstairs and wake up my daughter and get her out of bed, she is not a morning person ! Then it is time to make coffee and get ready to leave the house. Off to the bus at 6:20 a.m. some days I am lucky and my husband drives me to the bus stop as he goes right by it and leaves at the same time or I walk the 10 minutes to the bus and begin my commute to work. The commute now takes me about 40 minutes from the time I leave the house. It is a nice commute I take 2 buses to get to work and just enjoy sitting listening to my book or a podcast.

4D6CCCA7-7BC8-428D-BC6D-D26D022E37BE An early morning photo at the bus stop of me and Rick. I am kneeled down next to Rick wearing a winter coat and pink and grey scarf.

7:00 a.m. if my transfer works out and times are all good I am at work. I then have 30 minutes to get everything ready to start the work day and I also take this time to study. I am currently taking a management course so it works out well to have this time in the morning while the office is quiet to get some studying in.

8E7B5330-FFF5-4874-BB9E-ADE7E7B5FDFB Photo of my iPad, computer and coffee while I study.

It is hard to believe even as I write this that I am a morning person now and actually enjoy my mornings. I also realize how mundane and boring this may seem but it is a good way to show people that my days are no different than yours even though I live with a disability my life is just as mundane and boring  as the next person.

Until Next Time !

Ashley and Rick

 

Don’t be ashamed…….

Hello Everyone, 

As I get ready to do some travelling for work, and go to some training I am reminded of my anxiety and worries as they sneak up on my again. I am a very independent person and I pride myself in being able to live a life that I want to live without letting my disability or people’s perception of capability dictate how I live my life. There are times though when we have to face anxiety, fear, worry and all the ugly. 

When I have to go somewhere new a lot of the ugly shows up for me. I am someone who needs to know all the details, everything from the set up of the venue, the layout of the course, if there is a buffet for meals. The more information I have the better I feel. Now that is not always possible and realistic. So that is when I find myself dealing with anxiety, I worry about all the logistical things like, is there going to be someone to assist me with orientation to the new space, will I have assistance with the buffet (buffets are a blind persons worst nightmare), will I seem like I am incapable if I need to ask for help, will I have access to all the materials being used. There are so many things that people who are not blind or partially sighted don’t think about that we have to and the biggest anxiety for me is making a good impression. What I mean by this is when you are at an event you want to meet new people and network, make a good impression. I find it really hard to network in a large group when I am alone because I can not tell where people are, it makes it hard to approach someone and strike up a conversation. I have been in situations where I am left standing there and probably looking a little pathetic because I can not figure out where people are and if they are alone or who they are or any of these things. Then there is the issue of people thinking I am being rude because I am not looking them in the eye when I am not I just can’t see. 

I have anxiety about these things but it does not stop me from doing the things I want to do. It makes me a stronger person on the other end, I used to be embarrassed to talk about it and I felt so alone when I had anxieties like this. Now I know that I am not alone and if I talk about it, it makes it better because I hear myself and can realize I am going to be fine. My friends are also a great support to reassure me that I will be fine it will all work out and that I am more than capable. 

We all doubt ourselves and have anxiety around different things. People who don’t have a disability struggle with anxiety and worry. It is not something to be embarrassed about it is something to own and know that the more you deal with it, the stronger it will make you. The only thing having the ugly show up every once in a while says, is that you are human.

Until Next Time, 

Ashley and Rick  

How A Blind Mom Cleans

Hello Everyone,

I hope you are all doing well.

I get many questions around whether I clean my house or if I have a cleaning person or does my husband do it. The answer is I wish I had a cleaning person but unfortunately, it is me who does the majority of the cleaning. I do have a husband who helps out and three kids who have chores (I know I am a horrible mom) but the bulk of it falls to me.

The main thing that people don’t think that I do is clean the bathroom so today we are going to discuss how I am able to do this. First of all, I know the set up of the bathroom so I am able to locate the loo very easily same with the bathtub and sink.

I have a caddy that has all my cleaning supplies in it, I carry that to the bathroom and then start the process. I really hate cleaning the bathrooms just thought I would throw that out there. I usually start with the mirrors and I touch them and then spray the cleaning on the mirror. I am sure I leave streaks behind every once in a while but I am not using them so that is ok they look clear to me.

 

In the pictures above you can see my caddy as well as how I tell apart the two bottles that feel identical. One is Windex and one is Multi-purpose cleaner, I have two bump on dots on the multi-purpose and one bump on dot on the Windex. This really helps to make sure that I am using the cleaner that I want. The other bottles have a shape or defining feature that I have memorized so I am able to tell which one is which.

Next is the sink and counter, I spray the sink and counter surface with cleaner and then I wipe it down systematically. I start at the one side and work my way down and over the counter in small sections so that I get the whole thing.  I do it almost like a search and rescue crew would search for someone who is missing it is very methodical.

Next is the toilet and I do the same as the sink I just spray down the part of the toilet that I want to start with and work my way around the toilet. Toilets are nasty, I wear gloves to do the toilet because I am blind so I do use my hands to check if I missed any cleaner or if I can feel anything. The bathtub and shower are done the same way.

I try to clean the bathrooms more often so that if I did miss something hopefully I will get it next time. It is possible to do all the cleaning in the house if you do it systematically.

I know it may seem impossible to some that a person who is blind cleans and does all of these “normal” tasks but when blindness is your reality it really isn’t that out there; it needs to be done and we do it. The way we do it is probably different but we definitely do it. In fact, my husband will tell you even though I can not see the world around me, I am a clean freak, it drives him and the kids nuts. If it is out of place I will find it, it must be my super power!

Until Next Time,

Ashley and Rick

What Defines Independence?

What makes you independent?

Are you independent if you can do everything on your own and not need any help? Are you less independent if you need to ask for help? What if we looked at independence in another way, what if we were more independent if we were confident enough to know when to ask for help.

There is this presumption that people with disabilities are not as independent as able-bodied people because there are aspects of our lives and days that we need to ask for assistance.

I truly believe that I am more independent because I am confident enough to ask for help. I will give you an example. In order for me to cook meals for my family, I need to be able to go and get groceries. So let me walk you through how this works ad show you that me asking for help makes me more independent than if I was to not ask.

I make my list at home, print it out and head to the store. When I reach the store with my guide dog I then find a counter and ask if there is someone that is able to help me get the items on my list. I will hand them the list and follow them around the store picking up my items. I then pay for the items and head home. After getting home I am able to make meals for my family.

If I did not ask for help I would have to wait for my husband to be able to take me to the store and help me pick out the items that I need. So, me knowing that I need help at the store makes me more independent and able to be like any other parent out there, going to the store and getting groceries to make supper.

Learning to ask for help when you need it does not make you weaker it makes you stronger. It also makes you the most independent version of you! So please never be ashamed or feel less than because you need help with something.

Until Next Time!

Ashley and Rick

Blind Caramel Corn

Baking is something that I have grown up loving to do. My parents owned a bakery for 26 years as I was growing up, so I grew up in a bakery really. I spent many hours there beside my dad and my mom baking and decorating and packaging. I loved to bake I helped my dad with everything from bread, buns, cakes, cookies, pies and donuts it was definitely something that I hold dear to my heart today.

My dad sadly passed from cancer 5 years ago, to this day when I bake it brings back such amazing memories of spending hours and hours with my dad baking up a storm. This is something that I really want to have with my kids as well. My children love to bake with me and we have so much fun doing it.

Being blind some people think that baking is not something that I would be able to do, but I learned to bake with low vision which meant I learned to do it with my hands and not my eyes. So even though I am totally blind today I am still able to enjoy it just as much as before.

Around the holidays I have many recipes that my children and I love to make. We love baking cookies, squares and especially love making many batches of caramel corn. So what a great way to share my love of baking with you then to share our quick and easy caramel corn recipe. It is always a hit around the holidays or any other time you whip up a batch.

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Carmel Corn Recipe
1 cup margarine
1 cup brown sugar (packed)
1 cup white sugar
1/2 cup corn syrup (I use about 3/4 cup)
Pinch of cream of tartar
1 tsp baking soda
20 cups popcorn

-Pre Heat oven to 200c
-In a saucepan combine margarine, brown sugar, white sugar, corn syrup, and cream of tartar. Make sure the saucepan has some room as this will foam up and almost double.
-Bring to a boil while constantly stirring, once boiling let boil for 2 minutes.
-Remove from heat and stir in baking soda it will foam up a little.
-Pour over popcorn in a large roaster and stir until all the popcorn is coated.
-Bake for 1 hour stirring every 15 minutes. Put onto cookie sheets once you remove it from the oven to cool. Enjoy !

I hope you enjoy making this easy recipe and enjoy making memories that will last a lifetime!

Until Next Time!
Ashley and Rick